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Justina Pelletier: Shocking Boston Children’s Hospital Policy Revealed

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Justina Pelletier has been essentially held captive at the Boston Children’s Hospital for an entire year. As previously reported by The Inquisitr, the teenage girl was taken from her parents after a dispute over medical treatment. The “Free Justina” movement has gone viral, with donations both large and small pouring in the help her parents to not only cover legal expenses, but to put food on the table. The Pelletier family has poured their life savings into the ongoing court battle to retain custody of their daughter.

Lou Pelletier recently broke the court ordered gag order and plead for support for his daughter and her return home. An investigative report by The Blaze revealed details in the Boston Children’s Hospital policy manual which many will find shocking.

An excerpt from the Boston Children’s Hospital’s “Clinical Investigations Policy and Procedure Manual” reads:

“Children who are wards of the state may be included in research that presents minimal risk or greater than minimal risk with a prospect of direct benefit.

Duke University Health System and John Hopkins Medicine are reportedly have similar research subject guidelines pertaining to wards of the state. A report in the journal Pediatrics argues that protections for wards of the state do not go far enough to protect them from possible research programs.

lou pelletier

An excerpt from the wards of the state research subject reports reads:

“Current federal regulations mandate additional safeguards, beyond those that apply to all pediatric research, for some research with wards of the state. Although these additional requirements are attentive to the concerns research with wards of the state raises, we argue that they do not go far enough. Society is obligated to ensure the harms wards of the state have already experienced due to parental mistreatment or abandonment are not compounded by further harm from inappropriate clinical research enrollment. This means wards of the state must be appropriately protected from risk and from being unfairly selected to bear burdens in clinical research. To these ends, additional safeguards and modifications to existing guidelines are needed.”

The teenager was diagnosed with mitochondrial disease several years ago. The condition is a genetic disorder that often causes weakness and the loss of muscle coordination. But she lived a normal life. In February 2013, the girl was hospitalized for the flu. After being admitted to Boston Children’s Hospital she was set to be examined by her specialist. Before the anticipated doctor could see Justina, a different team of doctors arrived and questioned the original diagnosis and declared an entirely different condition was impacting the young woman.

Linda Pelletier, the girl’s mother, said that the new crew of doctors informed them that Justina had somatoform disorder. If the woman’s statements are accurate, Boston Children’s Hospital staffers immediately called the state’s Department of Children and Family, and the state refused to let the parents leave with their child. Somatoform disorder is a mental, not a physical illness. Justina’s parents are currently permitted to visit her just once per week for a single hour and can make one 20-minute phone call to communicate with their daughter. “It’s beyond any wildest nightmare that you could think of,” her father told a local TV station.

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11 Responses to “Justina Pelletier: Shocking Boston Children’s Hospital Policy Revealed”

  1. Brad Bryant

    The State of Massachusetts is committing a crime and this case needs to be appealed to the U. S. Supreme Court. Where are the MA Senators and congress people? Where is Senator Joe Lieberman from CT? Thanks to Megyn Kelly for featuring Mr.Pelletier on the Kelly File tonight and for Glenn Beck for bringing it to our attention.

  2. Margaret Knapp

    You should reserach more about the story of Karina Hansen, age 25, in Denmark. She has M.E. (CFS). Denmark didn't like paying a stipend under their law to her mother to care for her and tried to have her committed, but she kept being found competent. So, they called Per Fink at the Hammel NeuroCentre in Denmark. Per Fink is EXPERIMENTING on patients with M.E. to try to prove his theory that he has published that patients with a whole list of disease could just be lumped under one psychiatric diagnosis called "bodily distress syndrome" and basically not treated for their original condition. Per Fink's definition of "competency" is that the patient disagrees with him, so his staff declared her incompetent and had her sectioned into his Neuro Center where she has been trapped for more than a year. Now he has his own personal research subject who can never get away. Per Fink's work is under consideration to be included in the ICD-11 and the DSM (the "bible" of diagnostic manuals for doctors in U.S. and worldwide). This is a much bigger problem than just Justina. It's a worldwide movement to give patients with real medical conditions a psychiatric diagnosis and sweep them under the rug, because they cost money. It also is an opportunity for the psychiatric field of medicine to grab a big chunk of business. They are having similar problems in the U.K. as well — look up Sophia Mirza.

    Follow the Money.

  3. Jjccmmgg Mapper

    this is just the beginning of the horror of Obama care… what they don't want to pay they will use excuses to sweep people under the rug,…heaven help us….. or lets fight to get rid of this Obama care disease

  4. William Fuzi

    Dr. Simona Bujoreanu The psychologist who Vacated the diagnosis of Justina Pelletier, and then rediagnosed her with somatoform disorder within hours; was predisposed to do so.

    Ok everyone I need to ask a favor. This is very important, and needs to be spread far and wide. This little girl is the first casualty of the Obama Care death panels. Basically she was to expensive, and her treatment needed to be stopped. Problem is Hospitals are going to be the ones who decides who receives treatment. Here is an abstract co authored by the doctor who vacated a previous diagnosed condition, and claimed that this little girls sickness is all in her head. The doctor then diagnosed her with a somatoform disorder, after just a couple of hours. Somatoform disorders take months, if not years to diagnose. and is now denying her treatment to save the healthcare industry money. Here is the abstract.

    Approach to psychosomatic illness in adolescents.

    Patricia Ibeziako, Simona Bujoreanu

    Psychiatry Consultation Service, Department of Psychiatry, Children's Hospital Boston, Harvard Medical School, Boston, Massachusetts, USA.
    Current opinion in pediatrics (Impact Factor: 2.01). 06/2011; 23(4):384-9. DOI:10.1097/MOP.0b013e3283483f1c
    Source: PubMed

    ABSTRACT Due to the increased prevalence of psychosomatic presentations and the difficulty of managing such patients, this article summarizes the latest findings for identifying individual and family risk factors, and new trends in the evaluation and management of pediatric patients with psychosomatic illness.
    Up to 50% of patients in pediatric care will complain of medically unexplained symptoms with significant functional and emotional impairment. Such patients place heavy burdens on the healthcare system (frequent utilization of health resources and hospitalizations, specialist consultations, unnecessary investigations, and treatments). Somatoform disorders in pediatric care are associated with risks for psychiatric co-morbidity (anxiety and depressive disorders), family conflict, parent-perceived ill health, and school problems/absenteeism.
    Gaining expertise in addressing pediatric psychosomatic illness can make a great difference in patients' life and in physicians' professional satisfaction. Effective treatment approaches involve a multidisciplinary approach to consolidate care and facilitate communication, target the patient/family's understanding of the mind-body relationship and their acceptance of the bio-psycho-social formulation and treatment, and utilize functional rehabilitation and cognitive behavioral therapy for the individual and family and management guidance for schools.

  5. Scott Wilcox

    It was that way before. It's just now the right has a cool label for it. Before when someone didn't want to pay for something they called it pre-existing conditions.

  6. William Fuzi

    Scott Wilcox: Boston Children's Hospital is using wards of the state to preform medical research against their will, by removing the informed consent requirement. A professor at Harvard's medical school Dr. Ezekiel Emanuel probably designed the process that they are instituting. This is the complete life's system in operation. They are taking under age patients; with diagnosed conditions, removing their previous diagnosis, and then denying them treatment for their original diagnosis.

  7. Jeffrey Craig

    That's not the reason, in fact quite the opposite. The "Bader 5" psych unit she was committed to costs upwards of $1,000 a day. Multiple that by about a year. There doesn't need to be some grand conspiracy theory to make sense of this case. They are doing it for money. But now it has gotten to the point where if Justina is released, she will talk to the media and the media will be there to spread her voice. She could also testify. I do believe that they are no doubt trying to kill her, so that her testimony dies with her. But the state doing this to save money? It's costing them (or lou's insurance, or both) A LOT of money to do this. And of course that money is going into people's pockets.

  8. Linda Layer

    The only national media I have seen reporting this case is FOX. Every parent in this country should be concerned. I have a tweny year old son but I am also outraged. I see according to a Boston newspaper, Boston Children's Hospital tried the same tactic with five other parents. It may have been a great hospital before but any parent should think long and hard before admitting their child to that hospital.
    If the state had nothing to hide they could have resolved the issue by allowing an independent review of Boston Children's Hospital's actions. This reeks of a cover up. This young woman is not a small child and her rights are being violated. Shame on Massachusetts