Medical marijuana treatment wasn’t initially an option for Amelia Weaver when she first began having signs of Dravet syndrome when she was around 3 years old.
Dravet syndrome, a rare form of epilepsy, causes a person to have drop seizures, in which a person loses muscle control and seems to fall to the floor without control. According to City Pages, Amelia Weaver was having up to 80 drop seizures per day without medical marijuana.
The syndrome robbed Amelia of the ability to talk, walk, and even eat on her own with eating utensils. Amelia was once able to say her ABCs, count to 20, and do many things that other 18-month-old children can do before the seizures struck, but she began to regress as the seizures worsened.
Angie Weaver, Amelia’s mother, researched medical marijuana as an option to treat her daughter. Amelia had been on 23 different anti-seizure medications, and none had worked. At the time, medical marijuana was not legal in their state of Minnesota, so Angie wrote to the governor, testified before the legislature, and spent time speaking to the media about her daughter and medical marijuana.
Finally, medical marijuana became legal in Minnesota, and Amelia Weaver, now 9 years old, had her first doses in July 2015, according to the Duluth News Tribune. Her early responses to the medical weed were positive.
“We gave her her first dose on Friday morning,” Angie Weaver said the following Monday after Amelia was given medical marijuana for the first time. “She had a seizure-free day.”
In fact, the little girl only had two drop seizures that Monday afternoon. Her mother was pleased with the results.
“We know and we understand that Amelia has a very serious medical condition. But all the advocating and all the fighting and all the work was worth it for just one drop-free day.”
Now Amelia is thriving and catching up to other kids. She is speaking and sleeping regularly again after taking medical marijuana as prescribed. For the Weavers, medical marijuana was the medicine they had been searching for to ease so many of their daughter’s symptoms.
“Amelia has seen drastic immediate results from medical cannabis. After watching our daughter suffer for years, we are so relieved that something is finally giving her some relief,” her mother said.
The medical marijuana Amelia Weaver takes for Dravet syndrome costs about $200 per month, and those costs are expected to grow. The family has set up a GoFundMe page to help with Amelia’s medical expenses.