Little Girl With Life Threatening Bone Marrow Disease Raises Awareness By Dancing: Audrey Nethery Hopes To Bring Awareness To Diamond Blackfan Anemia

Audrey Nethery is a 6-year-old girl from Kentucky suffering from Diamond Blackfan Anemia, a life-threatening bone marrow disease. Since her diagnosis, she has undergone 20 blood transfusions due to her body’s inability to create new red blood cells. The disease also hinders her ability to circulate oxygen through her blood.

Rather than succumb to the disease and become sheltered at such a young age, Audrey decided to take her disease to social media and spread the word about Diamond Blackfan Anemia. She has always loved to dance — and does so quite well — so she decided to post videos of herself dancing to popular songs and raise money for the horrific disease.

According to the Daily Mail, Aubrey loves to dance and is active in Zumba. Her parents, Scott Nethery and Julie Haise, uploaded a video of her dancing to the Kidz Bop version of “Uptown Funk” and found that it quickly went viral and reached over 2.8 million views since March. With so many people willingly watching the video and sharing it with friends, Audrey and her parent’s decided to use it as a means to share information about Diamond Blackfan Anemia and raise funds for the Diamond Blackfan Anemia Foundation.

In a photo posted on Facebook, Audrey shared an image of herself holding a check in the amount of $10,000 made out to the Diamond Blackfan Anemia Foundation, all earned just by doing what she loves: dancing.


Audrey may look active and healthy in the video, but her father shares that she does have times where she is worn out and in pain, which is caused by the disease. However, he also shares that she still tends to keep a positive outlook on life.

“Audrey is a happy, loving, smart, little girl who loves to dance, listen to music, and collect dolls and stuffed animals. She is incredibly strong and leaves an impression on everyone she meets!”

Metro reports that Audrey’s father is ecstatic about the amount of support complete strangers have shared. He was a bit concerned that Audrey may be made fun of in the videos because she looks a little different than other little girls, but he soon realized the exact opposite.

“Once people realise she has a life threatening illness, it really touches their hearts. Yep, it really does.”

Although Audrey and her parents are ecstatic about the attention that has been brought to the existence of Diamond Blackfan Anemia, they hope Audrey’s dancing will inspire people to donate to research and help find a cure.

[Photo Courtesy: Metro U.K.]